Overview

Patient groups registered with the ministry can submit patient input that will be considered during the drug funding review process.

Submission of patient input is not limited to the groups listed below. However, patient groups not on this list must register with the ministry before submitting patient input.

To register as a patient group with the ministry:

List of registered patient groups

  • AboutFace Craniofacial Family Society
  • Action Ontario for People with Neuropathic Pain
  • aHUS Canada
  • Alliance for Open Access to Psychiatric Medications
  • ALS Society of Canada
  • Alzheimer’s Foundation for Caregiving in Canada
  • Ambassadors for Mental Wellness
  • Anaphylaxis Canada
  • Aplastic Anemia and Myelodysplasia Association of Canada
  • The Arthritis Society — Ontario Division
  • Asthma Society of Canada — National Asthma Patient Alliance
  • Brain Tumor Foundation
  • Canadian Arthritis Patient Alliance
  • Canadian Association of Psoriasis Patients
  • Canadian Association of Wound Care
  • Cancer Advocacy Coalition of Canada
  • Canadian Breast Cancer Network
  • Canadian Cancer Survivor Network
  • Canadian Continence Foundation
  • Canadian Council of the Blind
  • Canadian Diabetes Association
  • Canadian Hospice Palliative Care Association
  • Canadian Liver Foundation
  • Canadian Organization for Rare Disorders
  • Canadian Pain Coalition
  • Canadian Patient Coalition
  • Canadian Pemphigus and Pemphigoid Foundation
  • Canadian PKU and Allied Disorders Inc.
  • Canadian Psoriasis Network
  • Canadian Pulmonary Fibrosis Foundation
  • Canadian Skin Patient Alliance
  • Canadian Spondylitis Association
  • Canadian Society for Mucopolysaccharide & Related Diseases
  • Canadian Treatment Action Council
  • Canadian Woman with Fibroids
  • Carcinoid Neuroendocrine Tumour Society (CNETS) Canada
  • Centre for ADHD Advocacy Canada
  • Centre for ADHD Awareness — Canada (CADDAC)
  • Colorectal Cancer Association of Canada
  • Consumer Advocare Network
  • COPD Canada
  • COPD Canada Patient Network
  • CLL Patient Advocacy Group
  • CLLSLL at Groups.io
  • CNIB
  • The Chronic Pain Association of Canada
  • The Chronic Myelogenous Leukemia Society of Canada
  • Crohn’s and Colitis Canada
  • Chronic Lymphocytic Leukemia Patient Advocacy Group
  • Cystic Fibrosis Canada
  • Eczema Society of Canada
  • The Endometriosis Network
  • Epilepsy Halton Peel
  • Epilepsy London & Area (Epilepsy Support Centre)
  • Epilepsy Ontario
  • Epilepsy Ottawa — Carleton
  • Epilepsy Toronto
  • Foundation Fighting Blindness
  • Foundation for Prader-Willi Research Canada (FPWR Canada)
  • GI Society
  • HAE Canada
  • Heart and Stroke Foundation (Ontario)
  • Huntington Society of Canada
  • Hypertension Canada
  • The Isaac Foundation
  • Kidney Cancer Canada
  • Kidney Foundation of Canada Ontario Branch
  • The Leukemia & Lymphoma Society of Canada
  • Life Raft Group Canada
  • Lung Cancer Canada
  • Lupus Canada
  • Lymphoma Foundation Canada (Lymphoma Canada)
  • Magpie Media Inc.
  • Mastocytosis Society Canada
  • Melanoma Network of Canada
  • Migraine Canada
  • Mood Disorders Association of Ontario
  • Multiple Sclerosis Society of Canada, Ontario Division
  • Myeloma Canada
  • The National Gaucher Foundation of Canada
  • Ontario Lung Association
  • Ontario Traumatic Injury Association
  • Osteoporosis Canada
  • Ovarian Cancer Canada
  • Pancreatic Cancer Canada
  • Parkinson Society Canada
  • Parkinson Society Canada Ontario Region
  • Patient Commando
  • PKD Foundation of Canada
  • Prostate Cancer Canada
  • Pulmonary Hypertension Association of Canada
  • Rethink Breast Cancer
  • Robbie’s Rainbow
  • Sarcoma Cancer Foundation of Canada
  • Save Your Skin Foundation
  • Schizophrenia Society of Ontario
  • Sickle Cell Awareness Group of Ontario
  • Sjogren’s Society of Canada
  • Scleroderma Society of Ontario
  • Stroke Survivors Association of Ottawa
  • Thyroid Cancer Canada
  • Tourette Syndrome Foundation of Canada
  • Tuberous Sclerosis Canada Sclerose Tubereuse
  • Type 1 Together
  • The UnHysterectomy
  • Women’s Health Initiative Network